Tag: Sohana Research Fund
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Funding Freedom from EB – July 8, 2020
Cure EB Damian plus Sohana and her family explain what funding research means to families living with Epidermolysis Bullosa. With treatment trials started there is a real chance to improve the lives of children who are really suffering. Please visit Cure EB.org here or their Just Giving page here. Cure EB (formerly Sohana Research Fund)…
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Giving Tuesday – Nov 27, 2018
Cure EB: The Big Give Christmas Challenge by Damianista | Fan Fun with Damian Lewis | November 27, 2018 Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff…
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Damian Raises Awareness for CureEB – June 26, 2018
Damian’s Children Throw Water Balloons at Him for ‘EB Pop, Make the Blisters Stop’ Campaign by Damianista | Fan Fun with Damian Lewis | June 26, 2018 First things first. Same wonderful charity. Same great mission. Same brilliant patron. NEW NAME!
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Damian Lewis Attends GFI Charity Day for Sohana Research Fund/Cure EB – Sept 11, 2017
On the Trading Floor for a Good Cause by Damianista | Fan Fun with Damian Lewis | September 11, 2018 We all know Damian Lewis is a proud patron of Cure EB, formally Sohana Research Fund. Damian ROCKED the trading floor on Charity Day in 2014 picking up the phones to help raise money for Sohana…
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Designing His Own Philanthropy, Part 1 – May 11, 2017
Designing His Own Philanthropy, Part 1 by Lynda – guest blogger for Fan Fun With Damian Lewis – May 11, 2017 Part I of Lynda’s detailed survey into Damian’s generous heart. In case you missed Part II, it is here. Lynda, one of Fan Fun With Damian Lewis’ first and constant supporters, has been a consultant working…
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Stick Out Your Tongue at EB – July 5, 2016
Stick out your tongue out at EB because Sohana and other EB kids can’t. Due to blistering and scarring in her mouth, which makes eating painful, Sohana cannot stick out her tongue. She has lived with the pain of EB for all her life and before she turns 14, we are asking you to join…
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Damian Interviews Professor John McGrath About EB – Feb 16, 2015
SRF patron Damian Lewis interviews Professor John McGrath from Guy’s and St Thomas’s NHS Trust, Kings College, London to learn more about EB. Epidermolysis Bullosa is a genetic skin blistering condition that affects over 500,000 people around the world, but very few people have heard of it. Those who have realise what a devastating impact…